Volume 10 -                   MEJDS (2020) 10: 165 | Back to browse issues page


XML Persian Abstract Print


1- Science and Research Branch, Islamic Azad University
2- Department of Psychology and Education of Exceptional Children, Allameh Tabataba'i University
3- Department of Psychology, Payame Noor University
4- Department of Psychology and Education of Exceptional Children, Science and Research Branch, Islamic Azad University
Abstract:   (1656 Views)
Background & Objectives: Autism Spectrum Disorders (ASDs) are neurodevelopmental conditions, i.e., characterized by impairments in domains, such as social interaction and communication across multiple contexts as well as the presence of repetitive and stereotyped behaviors. ASD imposes high stress on parents or caregivers. The stress negatively impacts parents’ Quality of Life (QoL) and coping styles, and disrupts their daily and social functioning. Findings indicate that caregivers, especially the mothers of children with autism, experience a poor QoL. Considering the effects of caregiving for a child with ASD on the family members and particularly parents and their QoL, it is essential to provide a solution to improve their QoL. Therefore, the present study aimed to investigate the effects of mindful self–compassion training with a focus on the Islamic–Iranian lifestyle on the QoL of the mothers of children with ASD.
Methods: This was a quasi–experimental study with a pretest–posttest and three–month follow–up and a control group design. The statistical population of the study was all the mothers of children with ASD who were registered in the Autism Association of Kashan City, Iran, in 2019. The statistical sample included 24 mothers who volunteered to participate in the current study. They were divided into two groups of test and control (n=12/group). The inclusion criteria for the mothers were holding high school diploma or higher degrees, being married, not being pregnant, not having respiratory and cardiovascular diseases (according to their medical records), not receiving any psychological or psychiatric treatments (according to their medical and psychological records), and scoring ≤50 in the World Health Organization Quality of Life (WHOQOL–BREF) (1996). Absence in two training sessions and not performing homework assignments were the exclusion criteria for the mothers. To develop a mindful self–compassion program focused on Islamic–Iranian lifestyle, based on the theoretical framework of cognitive–behavioral approach and Islamic teachings, the material was firstly extracted from works of Kabat–Zinn on mindfulness (2003), Neff and Germer on self–compassion (2013), Germer and Neff mindful self–compassion (2020), Gilbert and Procter on the compassionate mind (2006), Kalhori et al.’s mindfulness–based on Islamic–Iranian Teachings (2020), as well as the Islamic sources and texts, the Holy Quran, Nahj al–Balaghah, Bihar al–Anwar, Mizan al–Hikmah, Ghurar al–Hikam, the Masnavi by Rumi, the Divan by Hafez, and Saadi’s Divan. Subsequently, they were organized using the content analysis method and the content and tasks of each session were designed under the supervision of the advisors of this research. To evaluate the content validity, the program was presented to 9 specialists (6 clinical, general, & exceptional children’s psychologists with the academic rank of professor and assistant professor and >10 years of clinical experience, 2 specialist in theology, religions, and mysticism with the academic rank of assistant professor, and 1 Persian literature expert with the academic rank of an assistant professor). After obtaining the opinions of experts and applying them, to quantify the content validity of the program, the Content Validity Ratio (CVR), proposed by Lawshe (1975) and Waltz and Bausell’s Content Validity Index (CVI) (1983) were used per session. The CVR and CVI amounts were approved at 0.78 and 0.88, respectively. The program was first applied to a preliminary single–group study, consisting of 5 mothers of children with ASD, and a poor QoL; then, it was prepared for the final implementation. To measure the explored mothers’ QoL, the WHOQOL–BREF, a short version of QoL, i.e., developed by the World Health Organization was used in the pretest, posttest, and follow–up stages of this study. The experimental group received an 8–session training, one session per week, and each session lasted two and a half hours; the training was performed by the first researcher and the control group remained on a waiting list for training. A 15–minute break was included in all sessions. First, the obtained data were analyzed by descriptive statistical measures, such as mean and standard deviation. The collected data were also analyzed by Student's t–test, Bonferroni test, Chi–squared test, and repeated–measures Analysis of Variance (ANOVA) in SPSS. The significance level of statistical tests was α=0.05.
Results: The repeated–measures ANOVA results for the QoL components indicated that in physical health, mental health, and social relationships, group factor (p<0.001), time factor (p<0.001), and time and group relation (p<0.001) was significant. In environment health, group factor (p=0.440), time factor (p=0.875), and time and group relation (p=0.071) were not significant. The results of Bonferroni post–hoc test suggested a significant difference between the mean scores of physical health, mental health, and social relationships in the pretest and posttest stages (p≤0.001), also in the pretest and follow–up stages (p≤0,001); however, no significant difference was found between the mean scores in the posttest and follow–up stages. Plus, there was no significant difference between the mean values of environment health, in the pretest and posttest stages (p=0.077), as well as the pretest and follow–up stages (p=0.091).
Conclusion: The present research findings revealed that the mindful self–compassion with a focus on Islamic–Iranian lifestyle program training was effective in improving the QoL of mothers of children with ASD. Therefore, educational and medical centers can use this training to improve the individual and social functions of the parents and caregivers of children with ASD or other developmental disorders.
 
Full-Text [PDF 771 kb]   (668 Downloads)    
Type of Study: Original Research Article | Subject: Psychology

References
1. American Psychiatric Association. Diagnostic and statistical manual of mental disorders: DSM-5. 5th ed. Washington, D.C: American Psychiatric Association; 2013.
2. Snyder W, Troiani V. Behavioural profiling of autism connectivity abnormalities. BJPsych Open. 2020;6(1):e11. [DOI]
3. Tung L-C, Huang C-Y, Tseng M-H, Yen H-C, Tsai Y-P, Lin Y-C, et al. Correlates of health-related quality of life and the perception of its importance in caregivers of children with autism. Research in Autism Spectrum Disorders. 2014;8(9):1235–42. [DOI]
4. Parsons D, Cordier R, Lee H, Falkmer T, Vaz S. Stress, coping, and quality of life in families with a child with ASD living regionally. J Child Fam Stud. 20201;29(2):546–58. [DOI]
5. Prata J, Lawson W, Coelho R. Stress factors in parents of children on the autism spectrum: an integrative model approach. International Journal of Clinical Neurosciences and Mental Health. 2019;6:2. [DOI]
6. Begum R, Ahmed Mamin F. Impact of autism spectrum disorder on family. Autism Open Access. 2019;9(4):244–50.
7. Özgür BG, Aksu H, Eser E. Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder. Indian J Psychiatry. 2018;60(3):278–85. [DOI]
8. Ten Hoopen LW, de Nijs PFA, Duvekot J, Greaves-Lord K, Hillegers MHJ, Brouwer WBF, et al. Children with an autism spectrum disorder and their caregivers: capturing health-related and care-related quality of life. J Autism Dev Disord. 2020 ;50(1):263–77. [DOI]
9. Neff KD. Self-Compassion: an alternative conceptualization of a healthy attitude toward oneself. Self and Identity. 2003;2(2):85–101. [DOI]
10. Neff KD, Germer CK. A pilot study and randomized controlled trial of the mindful self-compassion program. J Clin Psychol. 2013;69(1):28–44. [DOI]
11. Germer C, Neff KD. Mindful Self-Compassion (MSC). In: Ivtzan I, editor. Handbook of mindfulness-based programmes: mindfulness interventions from education to health and therapy. Abingdon, Oxon ; New York, NY: Routledge; 2020. pp:357–67.
12. Gilbert P. Introducing compassion-focused therapy. Advances in Psychiatric Treatment. 2009;15(3):199–208. [DOI]
13. Neff KD, Kirkpatrick KL, Rude SS. Self-compassion and adaptive psychological functioning. Journal of Research in Personality. 2007;41(1):139–54. [DOI]
14. Sirois FM, Bögels S, Emerson L-M. Self-compassion improves parental well-being in response to challenging parenting events. J Psychol. 2019;153(3):327–41. [DOI]
15. Cousineau TM, Hobbs LM, Arthur KC. The role of compassion and mindfulness in building parental resilience when caring for children with chronic conditions: a conceptual model. Front Psychol. 2019;10:1602. [DOI]
16. Akin U. The predictive role of self-compassion on social well-being in Turkish university students. Suvremena Psihologija. 2014;17(1):53–62.
17. Umphrey LR, Sherblom JC. The constitutive relationship of social communication competence to self-compassion and hope. Communication Research Reports. 2018;35(1):22–32. [DOI]
18. Croft RL, Byrd CT. Self-compassion and quality of life in adults who stutter. Am J Speech Lang Pathol. 2020;29(4):2097–108. [DOI]
19. Quist Møller SA, Sami SL, Shapiro S. Health benefits of (mindful) self-compassion meditation and the potential complementarity to mindfulness-based interventions: a review of randomized-controlled trials. OBM ICM. 2018;4(1):1. [DOI]
20. Finlay-Jones A, Boyes M, Perry Y, Sirois F, Lee R, Rees C. Online self-compassion training to improve the wellbeing of youth with chronic medical conditions: protocol for a randomised control trial. BMC Public Health. 2020;20(1):106. [DOI]
21. Ahmadi Dastjerdi H, Kajbaf M, Kazemi H. The Effectiveness of the group education of Islamic meditation pattern on life style and the married women’s generalized anxiety. Studies in Islam and Psychology. 2016;10(19):57–82. [Persian] [DOI]
22. Jaber Varzane A, Mirjalili AM, Fallah MH. Compassion of prophets and its educational implications from the viewpoint of the Holy Quran and quotations. Journal of Islamic Education Research. 2019;8(1):73–103. [Persian] [DOI]
23. Ghorbani N, Watson PJ, Kashanaki H, Chen ZJ. Diversity and complexity of religion and spirituality in Iran: Relationships with self-compassion and self-forgiveness. International Journal for the Psychology of Religion. 2017;27(4):157–71. [DOI]
24. Bohadana G, Morrissey S, Paynter J. Self-compassion: a novel predictor of stress and quality of life in parents of children with autism spectrum disorder. J Autism Dev Disord. 2019;49(10):4039–52. [DOI]
25. Neff KD, Faso DJ. Self-compassion and well-being in parents of children with autism. Mindfulness. 2015;6(4):938–47. [DOI]
26. Rezapour-Mirsaleh Y, Abolhasani F, Amini R, Choobforoushzadeh A, Masoumi S, Shameli L. Effect of self-compassion intervention based on a religious perspective on the anxiety and quality of life of infertile women: a quasi-experimental study. Health and Quality of Life Outcomes; 2020. [DOI]
27. Ghorbani N, Watson PJ, Chen Z, Norballa F. Self-compassion in Iranian Muslims: Relationships with integrative self-knowledge, mental health, and religious orientation. International Journal for the Psychology of Religion. 2012;22(2):106–18. [DOI]
28. Thomas J, Furber SW, Grey I. The rise of mindfulness and its resonance with the Islamic tradition. Mental Health, Religion & Culture. 2017;20(10):973–85. [DOI]
29. Darvishi S, Khayatan F. Effects of self-compassion on the quality of life and happiness of mothers of children with autism spectrum disorder. Journal of Exceptional Children. 2018;17(4):77–86. [Persian] [Article]
30. Kalhori A, Sharifidramadi P, Ghobari Bonab B, Kazemi F, Farrokhi NA. Developing and validating the Islamic-Iranian based mindfulness intervention and investigating its effect on the mental health of mothers of children with autism. Mid Eas J Dis Stu. 2020;10:85–85. [Persian] [Article]
31. Soltani Nejad S, Kashi A, Zarezadeh M, Ghasemi A. Musical-motor activities on autism symptoms in children with high-functioning autism spectrum disorder. Mid Eas J Dis Stu. 2020;10:68. [Persian] [Article]
32. Wilson Van Voorhis CR, Morgan BL. Understanding power and rules of thumb for determining sample sizes. Tutorials in Quantitative Methods for Psychology. 2007;3(2):43–50. [DOI]
33. WHOQOL group. WHOQOL-BREF: Introduction, Administration and Scoring, Field Trial version, World Health Organization, Geneva; 1996. [Article]
34. Kabat-Zinn J. Mindfulness-based interventions in context: past, present, and future. Clinical Psychology: Science and Practice. 2003;10(2):144–56. [DOI]
35. Gilbert P, Procter S. Compassionate mind training for people with high shame and self-criticism: overview and pilot study of a group therapy approach. Clinical Psychology & Psychotherapy. 2006;13(6):353–79. [DOI]
36. Lawshe CH. A Quantitative approach to content validity. Pers Psychol. 1975;28(4):563-75. [DOI]
37. Waltz CF, Bausell RB. Nursing research: Design, statistics and computer analysis. 2nd ed. Philadelphia: FA Davis Company; 1983.
38. Skevington SM, Lotfy M, O’Connell KA, WHOQOL Group. The World Health Organization’s WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Qual Life Res. 2004;13(2):299–310. [DOI]
39. Nejat S, Montazeri A, Holakouie Naieni K, Mohammad K, Majdzadeh SR. The World Health Organization quality of Life (WHOQOL-BREF) questionnaire: Translation and validation study of the Iranian version. Journal of School of Public Health and Institute of Public Health Research. 2006;4(4):1–12. [Persian] [Article]

Rights and permissions
Creative Commons License This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.